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Solvadi~New Treatment for HepC

Discussion in 'HEP C HIV' started by dumbas, Jul 20, 2014.

  1. dumbas

    dumbas Active Member

    Been almost three weeks now off Sub. The main thing was a slow taper off, then to zero then suck it up for a couple of weeks. It wasn't easy but doable.

    Today I had some early nausea, that's probably from the Hep C treatment I am going through now also. So it's a perfect storm in my body. Sleep is so precious still. I tried melatonin, etc. Nothing works. Hopefully, this too shall pass soon. Hang in there and good luck.
     
  2. coues1

    coues1 Well-Known Member

    Great job. Sleep will come. I am sleeping 4 to 5 hours straight. some nights now. Some nights are
    more restless than others but getting better.

    You sound much better. I hope you are not beating yourself up anymore. Learn from the mistakes and try not to make the same mistakes again. It is human to be hard on yourself but human is the key word.

    Keep up the great work.
     
  3. spring

    spring Administrator

    Please tell me which protocol your're using for your HepC treatment? I recently heard from a friend who had success getting rid of his HepC by using the new drug Solvadi along with interferon and ribavirin for 12 weeks. He was considered cleared at the 2 week mark.

    Also, there is a new form of treatment coming out using the Solvadi that doesnt include the other two drugs. I'm sorta waiting for that so I can possibly avoid the use of interferon.

    PS. After you reply, I'm going to copy and move these to the Hep C forum where others seeking this type of info can find it, thanks for any info and feedback.
     
  4. dumbas

    dumbas Active Member

    I am using a combination of solvadi and ribavarin, NO interferon. I waited for this new treatment because I refused to take that interferon. Horrible side effects. Plus it's no guarantee.

    These two drugs work with little side effects. Hard for me to tell but I am off subs for almost 5 weeks now and I believe most of what I feel, the fatigue and stomach cramps and nausea are coming from the liver meds now. Can't be sure. But I am on a 24 week program because I have cirrhosis too.

    I am coming up non-detectable since I started in April. But it works! I feel myself getting better. I suffered for a couple of years with bad fatigue, etc waiting for these new drugs to come out. Watch out. They are expensive. $1000 a pill. So you better have good insurance. But insurance companies would rather pay for that than a liver transplant. Just got new blood work this morning., another ordeal. Post this to that thread. I'll be happy to contribute.
     
  5. spring

    spring Administrator

    I copied the above 4 posts from another thread and brought them here to the HepC forum to help generate a discussion about this new drug.

    I was diagnosed with HepC back in 1992 and until now have never considered treatment for it. My body has been fighting it off on it's own and keeping the viral level down, but I do have bouts with fatigue and am excited about this new drug that can cure the virus without all the nasty side effects.
    Until now, my doctor has been telling me that the cure would be worse than living with the virus, but now that I wont have to use the interferon..well...I'm in!!

    I am going to be checking into this soon to see if it's even an option for me financially. We shall see.

    Anyone else have this treatment yet? Any side effects for you? Are you considered cured?
     
  6. dumbas

    dumbas Active Member

    I've had three friends do the new treatment with no side effects and they are non-detectable. I also had friends do the interferon. Almost killed them. My doctor told me to wait and I'm glad I did. This is a cure. The docs are very excited about it. The Hep gets worse usually doesn't get better. I was diagnosed in 94 with really no symptoms. It's been the last couple of years that I started to be extremely fatigued. I have more strength now then I've had in years. I can feel my liver getting better.
     
  7. dumbas

    dumbas Active Member

    Not considered cured until a year after treatment ends. But yeah, I'm cured I feel it. Side effects, now that I am off the subs, are very very minimal. All the "effects" i was feeling were from the sub wd. Now that it is five weeks of, I don't feel anything. This treatment works. Let me know how you make out.
     
  8. Terrapin

    Terrapin New Member

    I'm definitely going to mention this to my Doc. She wants me to take the interferon treatment. I'm also on methadone maintenence and I've talked to some people that had a really hard time taking methadone while doing the interferon. And it takes so long, you're miserable and then it may not even work. I'm ready to find an alternative treatment. Maybe this is it! :wink: Fingers crossed!
     
  9. spring

    spring Administrator

    Well.. besides "dumbas" who posted about his cure in this thread, I have now talked to three more friends (two in 3D life and one online) who have been cured!

    Besides Solvadi, there is now a new one called Harvoni and from what I hear, you dont have to take the interferon or ribavirin with it. THIS is what I've been waiting for!
    I have heard too many bad things about the side effects of interferon, not sure about the side-effects of Ribaviron. The Dr even told me that the cure would be worse than me walking around with HepC since my body was keeping it at bay for years. Well, now there is supposed to be a cure without all the bad effects so I'm in!

    I start jumping thru the hoops this week to get to a specialist and will keep a journal of how it goes for me.
     

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